Comments for Perfect Broken Hearts http://www.abbysperfectbrokenheart.net 1 in 100 babies are born with a Congenital Heart Defect Fri, 18 May 2012 03:20:36 +0000 hourly 1 http://wordpress.org/?v=3.3.2 Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by shonda bradley http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2405 shonda bradley Fri, 18 May 2012 03:20:36 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2405 As a heart mom I know how all feel and this is well said and put I love my little man he has been through so much and will still have to go through more and thing can be deadly for all heart patients so think before u get around someone sick or before u touch someone sick. Thanks As a heart mom I know how all feel and this is well said and put I love my little man he has been through so much and will still have to go through more and thing can be deadly for all heart patients so think before u get around someone sick or before u touch someone sick. Thanks

]]> Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by Robin http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2404 Robin Fri, 18 May 2012 02:34:09 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2404 As a friend of a heart mom....well said. :) As a friend of a heart mom….well said. :)

]]> Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by Lisa http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2402 Lisa Thu, 17 May 2012 22:45:19 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2402 This is beautiful This is beautiful

]]> Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by Vimali http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2374 Vimali Mon, 14 May 2012 04:11:43 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2374 Thanks very much for sharing us. It is absolutely truth. When I read this article I can't able to stop my cry as Heart Kid mum. Thanks very much for sharing us. It is absolutely truth. When I read this article I can’t able to stop my cry as Heart Kid mum.

]]> Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by Danielle http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2333 Danielle Wed, 09 May 2012 12:46:43 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2333 That is so true. How as parents how we are feeling with our heart kids. Danielle That is so true. How as parents how we are feeling with our heart kids.
Danielle

]]> Comment on The Daily Regimen by Eive http://www.abbysperfectbrokenheart.net/?p=707&cpage=1#comment-2317 Eive Mon, 07 May 2012 22:28:21 +0000 http://www.abbysperfectbrokenheart.net/?p=707#comment-2317 wow! she is definitely one amazing girl! I LOVE YOU ABBY!!!!!!!!!! wow! she is definitely one amazing girl! I LOVE YOU ABBY!!!!!!!!!!

]]> Comment on Before Pulmonary Valve Replacement…Please Read This by Gwen http://www.abbysperfectbrokenheart.net/?p=699&cpage=1#comment-2311 Gwen Mon, 07 May 2012 04:42:25 +0000 http://www.abbysperfectbrokenheart.net/?p=699#comment-2311 Thank you for sharing your story. I have two children with heart defects. My older child had one heart surgery and luckily she will not have to have another one ever. My younger child has truncus. He just had his 3rd conduit replacement last July. Abby's story is such an inspiration. How lucky are we to have such courageous and amazing heart children. I truly wish u and your. Family the best. Thank you for sharing your story. I have two children with heart defects. My older child had one heart surgery and luckily she will not have to have another one ever. My younger child has truncus. He just had his 3rd conduit replacement last July. Abby’s story is such an inspiration. How lucky are we to have such courageous and amazing heart children. I truly wish u and your. Family the best.

]]> Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by Laura http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2295 Laura Sat, 05 May 2012 02:57:40 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2295 These words reflect my own experience so well. Thank you for sharing your story. You are an inspiration to all of us "heart moms". These words reflect my own experience so well. Thank you for sharing your story. You are an inspiration to all of us “heart moms”.

]]> Comment on Tetralogy of Fallot: Compatible with Life? by Lea http://www.abbysperfectbrokenheart.net/?p=295&cpage=1#comment-2294 Lea Sat, 05 May 2012 02:05:46 +0000 http://www.abbysperfectbrokenheart.net/?p=295#comment-2294 It's unfortunate but it sounds like the author of the other post may have had some confusing facts/data. Hard to say whether this was misinformation from the Dr. or poor writing on the author's part. But, being one of those moms whose baby was diagnosed w/ TOF at 19 weeks into my pregnancy, chromosome defects (like 22Q 11 deletion and trisomy) were a legitimate concern. We never thought TOF seemed "incompatible with life" but there are aspects of these conditions that may be incompatible with a quality of life. It's a tough call for parents that just want their child to be happy. Our little girl will have TOF but be otherwise healthy--a relief to us. But, we were very fortunate. It's not likely that the dr. persuaded the family one way or the other--I saw several doctors while awaiting our amnio results--no one encouraged us to terminate or continue in any particular way. It's up to the parents, 100%. If any dr. did try to sway these parents, that's deeply unfortunate. It’s unfortunate but it sounds like the author of the other post may have had some confusing facts/data. Hard to say whether this was misinformation from the Dr. or poor writing on the author’s part.

But, being one of those moms whose baby was diagnosed w/ TOF at 19 weeks into my pregnancy, chromosome defects (like 22Q 11 deletion and trisomy) were a legitimate concern. We never thought TOF seemed “incompatible with life” but there are aspects of these conditions that may be incompatible with a quality of life. It’s a tough call for parents that just want their child to be happy.

Our little girl will have TOF but be otherwise healthy–a relief to us. But, we were very fortunate.

It’s not likely that the dr. persuaded the family one way or the other–I saw several doctors while awaiting our amnio results–no one encouraged us to terminate or continue in any particular way. It’s up to the parents, 100%. If any dr. did try to sway these parents, that’s deeply unfortunate.

]]> Comment on 29 Ways in 29 Days: Things You Should Know About A Heart Mom by Lesahutchins http://www.abbysperfectbrokenheart.net/?p=613&cpage=1#comment-2292 Lesahutchins Fri, 04 May 2012 23:29:50 +0000 http://www.abbysperfectbrokenheart.net/?p=613#comment-2292 My heart baby turns 30this year 2 operations, still facing another at sometime in her life. Getting married this year! Life is good and thank you for the dr that took great care of her so long ago. My heart baby turns 30this year 2 operations, still facing another at sometime in her life. Getting married this year! Life is good and thank you for the dr that took great care of her so long ago.

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